Thank you, Rick!
Milan is actually in St. Louis today for a biweekly visit to her heart team. They put her into an experimental drug trial. We’re hoping to see some improvement in heart function, but no positive results yet. It’s still month 1 so we’re trying to remain optimistic. She may be in the placebo group.
AB
Todays email.........
Its hard for me, but I’ll try
Today we are celebrating!
Mila's heart function is up to 17%! Her blood pressure is great! She can walk down a hallway without getting winded!
This is all huge!
We are going up on a couple medications. Mila handles meds like a champ. So no worries there.
❤ Back to St. Louis on Tuesday!
LIl MIlan, what a cutie.......


And this is her older sister trick and treating this year. Look at the look on Milans face LOL

She is such a lil trooper, and BOB thanks us all for our prayers and good thoughts. Milan is going to be a very strong woman when she grows up. She is going through a lot.........
HANG TOUGH BOB, WE ARE ALL WIT CHA!!!!!!!!!!!!!!!